West Berkshire Fibromyalgia Support Group Holds Awareness Evening For Young Adults With Chronic Fatigue Syndrome And Fibromyalgia
The Department of Pain Medicine at the Royal Berkshire Hospital (RBH) and West Berkshire Fibromyalgia Support Group are holding a free, awareness evening for young adults with Chronic Fatigue Syndrome (CFS)/ M.E. and Fibromyalgia. Taking place on Tuesday, 23rd October from 6.00pm until 9.00pm at the West Berkshire Community Hospital, Thatcham, the aim of the evening is to provide information and support to young people in the area and to publically launch the service evaluation research project, which is being undertaken following a grant by Healthwatch West Berkshire’s Community Engagement Programme (CEP) and fund-matched by Greenham Common Trust.
Young people with Chronic Fatigue Syndrome (CFS)/ M.E. and Fibromyalgia aged between 16 and 30 years old, and their carers, are encouraged to come along to the event to learn more about their condition and the resources available to them. There will be a range of healthcare professionals, including: GPs from local practices, as well as Consultants, Physiotherapists and Psychologists from the local NHS services available to provide advice and to talk to. Additionally, there will be short talks from fellow sufferers, discussing how they manage their condition and flare-ups; as well as a screening of the BBC Newsbeat documentary ‘M.E. and me’.
“We are inviting anyone aged 16-30 years old, who is registered at one of the 13 practices within the West Berkshire area to take part in our research project” commented Dr Deepak Ravindran, Clinical Lead for Pain Medicine at Royal Berkshire Hospital. “Anyone from the area who completes the survey will be put into a prize draw to win a £100 Amazon voucher. We hope that those who are not eligible for the prize draw will take part in the survey too, as their input is valuable to determine the nature of the conditions, the symptoms and support that people receive; how they manage the condition, whether with drugs or other therapies; whether and how they socialise; whether they suffer from depression and anxiety and if they feel their condition is understood by family, peers, colleagues and others.”
“There will be members of our local Fibromyalgia Support Group at the event” said Alice Gostomski of West Berkshire Fibromyalgia Support Group. “Our members will be happy to meet some new faces at the event and hear how others deal with these debilitating conditions over a cup of coffee. We hold meetings, usually once a month, at the West Berks Community Hospital and would be pleased to welcome some new members to join our group.”
“We are hopeful that the grant we provided to undertake this pilot research project will raise awareness of the conditions” added Andrew Sharp, Chief Officer of Healthwatch West Berkshire. “Research into conditions like Chronic Fatigue Syndrome and Fibromyalgia is vital, so that we can help the more vulnerable in our community to live fulfilled and pain-free lives.”